As the title suggests patients is what we must all have but it is paying off. Brenya is making a lot of progress and a slow pace but it is progress none the less. She has been increasing her feeds and she has started to wean off of her medications more and more. She is finally off of her flowlan and they have even started to wean her off of the the gasses she is on nitric oxide and she is tolerating it very well. Yesterday she was at 20ppm and right now she is at 3ppm and if everything goes well she should be off by tomorrow. Then she might even be well enough to get rid of her breathing tube! She has been pooping great and they have been giving her small increases in her feeds as of right now she is at 50mg per kilo. Since they have started to wean down on the Morphine and Versed she has become more aware and active. She wiggles all the time and sometimes they have to give her a little extra versed to help her calm down or go back to sleep (Only when she starts too look uncomfortable or they are worried if she will pull out her breathing tube). She has been making cute little sucking motions when they clean out her mouth, this is great because it shows that she doesn't have an avoidance to things being in her mouth completely. This will make it easier when the time comes (hopefully soon) when she can be feed more naturally.
I would like to apologize for the late update but things have been moving at a slower pace and I wanted to update with something more exciting. I promise to be more diligent in my blogupdatingness (I know it is not a word Lori, and I don't care if I spelled it right Jenna)!
As for mom and dad we are doing fine with our downtime. We have been keeping ourselves entertained with the gifts from our friends and family. Thank you everyone for everything!
 |
| Baby Brenya back when she was on ECMO. It was one that I took on my Ipod that actually looks like she is smiling. |
No comments:
Post a Comment