Still not ready

The doctors decided to try to take Brenya off ECMO today but with no success.  They really wanted to get her off so they didn't have to put her through the stress of changing her tubes.  Her lungs are fully opened now and they thought she might be able to do it.  She did last longer this time, they had the tubes clamped for about an hour before she went back on.  They said she was doing ok, but she was on 100% support from the ventilator.  They couldn't take the risk of taking her off because since the ventilator was at 100% already there would be no extra support to give if she needed it.  So she has to stay on ECMO a little longer which means they have to now change the tubes.  The biggest worry about changing the tubes is her swelling.  She just got back to her normal size and they don't want to cause her to swell again but they just can't avoid changing the tubes any longer.  They are in the process of changing the tubes as I type this update.  They have given her an anti-inflammatory drug and some medication to help her urinate more to help prevent swelling. Hopefully this doesn't set her back too much.